The Icelandic Society for the Nervous System

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Letter no. 5 to Tetros Ghebreyesus Director of WHO from Audur Gudjonsdottir Chairman ISCI.

Your Excellency,The main purpose of this letter is to ask you, the world’s most powerful person in healthcare matters, to officially proclaim to the world that a cure for paralysis must be found and to...

2022: The Foreign Minister of Iceland Thordis Kolbrun Gylfadottir 2022

2022 The Foreign Minister of Iceland Thordis Kolbrun Gylfadottir at a meeting with Dr. Tetros Ghebreyesus Managing Director WHO about spinal cord injury and the Global Action plan on Epilepsy and...

Icelandic version

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Centralised registration by the Nordic countries of the treatment for spinal cord injury has become a reality

At the initiative of the Institute of Spinal Cord Injury Iceland, the Icelandic authorities became involved in 2010–2013 to get spinal cord injury approved as a matter of priority by the Nordic Council of Ministers. The first annual report of the Nordic centralised registry on spinal cord injury has now been published. See www.norscir.no The responsible parties for the centralised registration are Annette Halvorsen This email address is being protected from spambots. You need JavaScript enabled to view it. and Ann Louise Pettersen This email address is being protected from spambots. You need JavaScript enabled to view it.. The project is located in St Olavs Hospital in Trondheim in Norway.

I would like to begin this letter by thanking you and your colleagues for how positive you have been towards Iceland’s desire to add phrases such as potential cure in the nervous system..., see here
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Proposal of the Icelandic Division of the Nordic Council on spinal cord injury submitted during the 2010 session of the Nordic Council, see here
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Letter and Petition to the Nordic Council on spinal cord injury signed by Auður Guðjónsdóttir, Chairman of the Board of the Institute of Spinal Cord Injury Iceland on behalf of 8,500 Icelandic women, see here
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Proposal of the Nordic Council to the Nordic Council of Ministers on spinal cord injury, see here
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Letter from the Minister of Health and the Minister for Foreign Affairs to the Norwegian Minister of Health on spinal cord injury, see here
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Agreement from the Nordic Council of Ministers to make spinal cord injury a matter of priority within the Nordic countries, see here
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Letter from the Icelandic Minister of Health to the Institute of Spinal Cord Injury Iceland as regards his proposals to the 2015 Nordic Council Meeting which relate to spinal cord injury and the nervous system, see here
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Letter from the Icelandic Minister for foreign affairs to the Secretary-General of the Nordic Council of Ministers to the effect that the Council agree to have Nordic databanks in the field of neurology analysed and collated by means of artificial intelligence, see here
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Response of the Secretary-General of the Nordic Council of Ministers to the letter from the Icelandic Minister for Foreign Affairs, see here
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Response from NordForsk to the Nordic Council of Ministers, see here
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The Foreign Minister of Iceland encourage the nations of the world to join hands for spinal cord injury

October 2018 the Foreign Minister of Iceland, Guðlaugur Þór Þórðarson, gave a speech at the annual UN General Assembly in New York. Among climate change,gender equality and other matters this is what he said: In the past few decades we have also seen incredible advances in medicine. These advances have enabled us to live longer despite increasingly unhealthy lifestyles. Yesterday, we vowed to actively co-operate for the prevention of non-communicable deceases and the promotion of healthy lifestyles. One neglected issue is neurological disorders, including spinal cord injuries, that affect a billion people worldwide. The Nordic countries are working towards a common research database on neurological disorders to facilitate medical advances in this area. We encourage others to do the same as, yet again, co-operation will be key to success.

The nervous system needs well-known advocates

ISCI seeks well-known personalities that are ready to contribute to the work of better understanding of the nervous system. Included is participation in videos which would be on our You Tube page and where the world is encouraged to join forces to find a cure of the nervous system.

If you are interested or have suggestions please contact This email address is being protected from spambots. You need JavaScript enabled to view it. or fill out the contact form.

International efforts to enhance understanding of how the nervous system works.


The main reason how difficult is seems to find cure for brain and spinal cord injury, mental illness, Alzheimer's, Parkinson's, epilepsy, multiple sclerosis and ALS is that medical science do not have a full understanding of how the nervous system works. Therefore, ISCI and the Icelandic authorities have inquired the United Nations (UN) and the Nordic Council of Ministers that these two institutions should initiate the implementation of launching an international effort to better understanding of the nervous system. Knowledge is the basis of healing. On this website you can find the current information. Further information This email address is being protected from spambots. You need JavaScript enabled to view it.
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In 2014, Iceland Chaired the Nordic Council of Ministers.

At the same time, the ISCI and the Ministries of Health and Foreign Affairs held a conference with Nordic and other experts on spinal cord injuries. The role of the experts was to formulate plans for the Council of Ministers on the manner in which to implement the decision of the Council to make spinal cord injury treatment a priority within the Nordic Council. Report of the Icelandic Ministry of Health about the issue is available in the Ministry.

Founder and chairman of ISCI

Auður Guðjónsdóttir, Founder and chairman of Institue of Spinal Cord Injury Iceland

The Institut of Spinal Cord Injury (ISCI) was founded on 11 December 2007 at the initative of an Icelandic mother, Auður Guðjónsdóttir, who has for twenty years campaigned strongly for an Icelandic led international effort to improve spinal cord injury (SCI) treatment. Her SCI advocacy efforts and perseverance in the face of adversity have drawn widespread attention. The Icelandic government, businesses and individuals have joined forces to launch ISCI in support of her cause.
Read more about Auður

International Database on SCI

The database on innovations in treatment of spinal cord injury is now available in 5 languages:
English, Spanish, Arabic, Chinese and Russian
View database

Can you help? Join the team

The nervous system needs well-known advocates.
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Postal address: Institute of Spinal Cord Injury, Iceland - ISCI,
Main office: Institute of Spinal Cord Injury, Iceland - ISCI (Mænuskaðastofnun Íslands), Nesbali 56, IS-170 Seltjarnarnes
tel +354 562 4925 / +354 897 4925 isci @ isci.is